Day 62 – 16th February 2012

Today started with another lie in.  I’ve decided sleeping in at the clinic isn’t a major problem as it solves too issues – it means I can get as much sleep as I need and also means I miss breakfast, meaning I only have to worry about eating 2 meals a day instead of 3 (trust me, that’s enough here if I want to lose the gut).

Jenny had a settled night and woke up in good form.  She decided she would like to have lunch in the dining room, so we headed down there around 12.30pm.  I ordered a 2-egg omelette, which somehow ended up being translated into 2 omelettes, meaning Jenny ended up with an omelette she didn’t really want.  However, it worked out for the best as she did enjoy it and resulted in her having the first proper main meal in several days.  Dr. Herzog also noticed she was in the dining room and came across to let her know he had clocked the fact she was downstairs and out of bed (big tick in the box).  we haven’t quite cracked the seating in the dining room for Jenny yet so she still struggles to get comfortable, but we’ll work something out I’m sure.

Following lunch Jenny had an appointment with Max, the physiotherapist who did some walking with her in the corridor.  Again, this is massively significant as Jenny was able to do this a week ago and has struggled since.  Now it seems her strength, stamina, energy and resolve are all returning at once.  Laura Oakley reminded me yesterday, of an incredible quote which was applicable today – “life is not measured by the number of breaths we take, but by the number of moments that take our breath away”

Jenny & Max

Once Jenny had returned to bed for some rest, I headed off to the gym for my 2.30pm appointment with Dr Lisa and her brutal regime!  Today was a big breakthrough as I managed to progress somewhat with my skipping and can now skip and cross-over – what a clever boy I am!  In return for teaching me to skip properly I have offered to teach her how to juggle, so we headed off for a jog to Nidda, with Alex, to get some juggling balls (tennis balls were the best we could get in the end).  I’ll get around to teaching Lisa & Alex over the next few days.  Yesterday I promised to upload a video of Lisa skipping and I hate to fall back on a promise, so here she is…awesome.

 

If the above video won’t play directly from You Tube (due to international restrictions) then please click here to download the video (it’s set to open Windows Media Player by default and buffer the video – but this may differ from PC to PC).

Whilst we were in Nidda I managed to get Jenny a stress ball for her hands as she has lost some strength in her fingers over the last few weeks and she can now at least exercise her hands a little each day.  Her strength has improved a lot over the last couple of days and I’m sure will continue to do so over the weekend.  In the middle of Nidda, opposite the market square, is an old fire station which houses some retired fire equipment and vehicles and today it was open so I managed to get a photograph of Alex & Lisa with an old fire engine parked out front.  On the way back we came across a work van parked near a local hotel which is for a Bath / Pluming company nearby – obviously they don’t do much work in English-speaking countries…

Alex & Lisa @ Nidda Fire Station Bad Design

This evening we saw Dr. Herzog who came to our room with Dr. Dimitry.  He is pleased with Jenny’s progress and the pain relief seems to be stable.  We’ll see how the next few days go and the plan is for the port to be fitted on Tuesday, assuming all goes according to plan over the weekend.  She has had very little breakthrough pain relief today and it is clear that the IV medication is the best option for Jenny in the short to medium term.

Tonight was also the  final night before Cathy & Dick leave to return to the USA.  We have become very close and there is a clear connection between the four of us which has led to the formation of a long-lasting friendship.  I’ve said it many times but this clinic attracts a certain type of person which makes it very easy to make friends and establish relationships and Cathy & Dick are a classic example of this.  We are going to miss them dearly and Jenny & Cathy have a special bond which grows each time they meet.  It was decided that we would have yet another “pizza party” in our room and Alex also came along as well as Lisa and her father, Mike.  Another lovely evening was had by like-minded people, with pizza, pasta and steak consumed as well as me managing to smash a full bottle of wine on the floor of our room – genius!

Andy, Jenny, Cathy & Dick Alex, Mike & Lisa

Yesterday I received an email from one of Jenny’s old school friend’s Clare Ackerman who mentioned how much of a Janet Jackson fan Jenny is, and how they had a dance show as kids where Jenny danced to Janet Jackson’s “Rhythm Nation”.  Clare mentioned that some of the lyrics of that song may be appropriate for this blog and I tend to agree…

People of the world unite
Strength in numbers we can get it right
One time
We are a part of the rhythm nation

This is the test
No struggle no progress
Lend a hand to help
Your brother do his best
Things are getting worse
We have to make them better
It’s time to give a damn
Let’s work together come on

Every so often I dedicate a blog post to someone and tonight I want to dedicate this post to Cathy & Dick.  We have learnt so much from them about all sorts of things and formed a friendship which will last a lifetime.  They are an exceptional couple who have adapted to, and expanded on, the good things (in my opinion) that cancer creates – perspective, courage, life-balance and honesty.  We have spent some incredible times with these guys in a very short period of time and always look forward to our next meeting.  To two of the most amazing people we have ever met – we love you guys so much (have a safe trip home).

Cathy & Dick

Categories: KTF | 3,125 Comments

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3,125 thoughts on “Day 62 – 16th February 2012

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  45. Sylvia Kapp

    What a great post! containing impressive progress by Jenny, a tribute to Cathy and Dick who are indeed some of the loveliest people I’ve ever met, an exercise regime from you that puts the rest of us to shame, and truly brilliant skipping by Lisa (put to a great soundtrack). Brought a smile to my face on all fronts! – thank you. Lots of love to you both, S x

  46. Jane

    Wow what a Picture Jen!! What a star you are . KTFxxxxxx lots of love xxxx

  47. Ann

    You certainly take our breath away Jen, what a brilliant day for you, so much achieved! we are so proud and pleased, you are an inspiration to us all. Certainly on the road forward again.
    Can’t wait to see your skipping video Andrew! That will be something to watch! Amazing stuff from Lisa. You could do with your juggling box sent over and mezmorise all the staff and patients with your juggling skills, fire stick juggling and balloon modelling.
    Our best wishes to Cathy and Dick for a safe journey home, hope you meet up with them again soon.
    Fingers crossed for Tuesday. Say strong and fighting. The Girls send you lots of tuddles Mummy Bear. All our love and kisses Mum, Dad & the Girls xxxxx

  48. June

    What a great turn around Jen, never to be underestimated is our warrior princess…courage of a lion with the strength and determination to go,go,go and battle on!
    It is a good thing when you can get down to the dining room, glad you enjoying your meals again. Hold on in Jenny and KTF….stay vital.Hopefully you will get the portacath fitted and this is a step forward for you to travel home and touch base camp…what a celebration that will be !
    You have both met and have befriended amazing like minded people on your long journey, and these friends will stay with you both forever…the kindness of others bring true friendships together.
    Lisa is a skipping genius, you will have to get to it Andy..skip,skip, skip!
    The Pizza parties are the business, lets celebrate Jenny’s fantastic achievements …cheers…
    Speak tomorrow, it’s another day to feel the uplifting vibes from all of us back home..KTF..
    Love June and Ron xxxxxxxxxxxxxxxxxxx

  49. lee

    So lovely to read Jen is feeling a better – we are made up (as Im sure everyone else is).

    Rick and I were mesmerised by the skipping, however we’d love to see Andy’s efforts tomorrow, don’t let us down!!!

    xx

  50. Jayne Thack

    Good to see you up and about Jen….
    I went to see that dance show around 1990/91 ish, and I do recall Jenny, Clare Ack, Sue Bunk etc all giving it large to Janet Jackson – and me being jealous that I went to Rock Ferry – where, at the time, they never did dance stuff! Good times!
    Keep smiling Jen & Andy – you’re a real inspiration to us all.
    KTF
    Janey xxxxxxxxx

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