Day 55-57 – 9th-11th February 2012

We have had Jenny’s mum and her cousins Helen & Justine staying with us for the last 2 days so there has been limited opportunity to post a blog entry, but the upside is that there is quite a lot to catch up on.  It is now Saturday 11th February, or day 57, or the 1st day of week 9 depending on how you want to look at it, and we still don’t seem to be any closer to returning home.  Is that true?  Well, we must be closer to returning home and I’m sure that is the case but without a definitive date to aim for and arrange flights, then I suppose things are still up in the air.

Since our trip to Gießen hospital on Tuesday Jenny hasn’t been too good with fatigue and pain being her main issues.  She continues to display good vital signs (especially her blood pressure) so no real alarm bells are ringing.  We are quite used to the ups and downs of Jenny’s health over the last few months and there are usually indications as to the reason, and in my opinion this little spell of “down days” is no different.  Earlier this week we switched from IV meds to oral meds, which was always going to be a little difficult based on previous experiences.  This coupled with a bit of constipation and subsequent loss of appetite has led to some quite average days in comparison to the last week or so.  I’m confident that this will pass as Jenny has improved slightly each day over the last 3 days.  In light of this recent spell, Dr. Herzog felt it appropriate to cancel Friday’s appointment at Gießen for the portacath.  This has been rearranged for Monday and we’ll take a view on it over the weekend.  Pragmatically, it is definitely the correct way forward in terms of administering medication for Jenny but we keep stumbling at the final hurdle with this procedure and Monday will be our 4th appointment!

Thursday saw the departure of Stewart & Michelle who flew back to Australia in the evening.  This couple were simply a genuine “salt of the earth” pair who took life as it came.  Stewart was always a pleasure to chat with as he simply couldn’t stop smiling and Michelle was another “jock-strap” with a heart of gold.  We enjoyed their company greatly as we have with all the Aussie’s who have been through the clinic over the last 2 months (and there have been a few!).  We shared an interest in farming (mine being a mild interest) and Michelle kindly emailed me photos of a cow caesarian they performed on one of their cattle (I thought I’d spare the readers of the blog from those pictures!)

Andy, Jenny, Stewart & Michelle Michelle, Andy & Stewart

Thursday evening also saw the arrival of Jenny’s mum, Cathy, and her cousins Justine & Helen who flew into Frankfurt Hahn (Frankfurt’s 2nd airport) and hired a car.  I had booked them into the usual B&B and in the afternoon headed down to collect the keys from Johanna as I wasn’t sure what time they would arrive, as it had been snowing lightly during the day and didn’t know if there had been any delays.  Rolf & Johanna own, and run, the local B&B that most patients and guests seem to use and all of our visitors so far have stayed with them over the last 8 weeks.  They are a very welcoming couple who run a lovely guesthouse and unbeknown to me also have a dog!  I got to meet him as I was picking up the keys and managed to get a photograph of him with Johanna – everyone meet Spike (one seriously large dog – the picture doesn’t do him justice…)

Spike & Johanna

The girls arrived around 8pm, laden with gifts.  We decided to have dinner in our room and ordered pizza (again).  The presents were a great lift for Jenny and included some essentials, slippers and clothes from Cathy, a bracelet from Niggy, Jon, Ben & Sophia, a mug from Vicky, toiletries from Helen & Justine, perfume from Justine’s daughter Charlotte, a chocolate rose and a fabulous calendar made by her 2-year-old son (and our godson) Harry, which now sits proudly on Jenny’s wardrobe door.  I got my favourite choccy biscuits – lots of them.

Harry's Calendar

I met with the girls for breakfast the next morning about 9am and they started to meet people who they had read about on this blog, initially it was Hilary & Arthur over breakfast.  We spent some time with Jenny before Helen, Justine and I drove into Nidda for a few hours whilst Cathy looked after Jenny.  We had a little tour of Nidda before settling ourselves down at a cafe in the main market square.  The cafe had tables outside and we had commented earlier on how daft people looked sat outside in temperatures below freezing .  However, 15 minutes later we were doing the same, as the cafe provided blankets and it didn’t seem that daft all of a sudden.  We spent a couple of hours catching up over a few beers (coffee for Justine) and cheesecake before heading back to the clinic late afternoon.

Helen & Justine

We were hoping to get out of the clinic in the evening, with Jenny, for a meal at the Kurhaus Hotel, but she wasn’t quite up to it so we decide to continue to line the pockets of the local pizza takeaway joint by ordering again.  The girls all had steak whilst I couldn’t resist another pizza (different toppings this time!) 

Yesterday also saw the departure of Stephen & Tara from Orlando, Florida who were returning home for a few weeks before coming back to Germany for more treatment.  I didn’t get the chance to chat with Stephen & Tara as much as I would have liked as I’ve spent a bit of time with Jenny over the last week in our room as she hasn’t been up to venturing down to the dining room for meals.   Stephen was only diagnosed with metastatic stomach cancer in December 2011.  A week before his diagnosis he had a pericardectomy (removal of the lining of the heart) and had been hospitalised several times prior to his diagnosis, as the cancer had spread to his lymph nodes, pericardium (lining of his heart), and spine.  The couple chose a treatment plan in Germany, a difficult decision as they have 2 young boys back home in the USA.  Jenny & I would like to wish them the best of luck for the future.

Andy, Stephen & Tara

Also departing yesterday was Fiona from Scotland who has been a real crutch for Jenny over the last 10 days.  It was her 3rd visit, and potentially has 3 more, meaning we are sure to see each other soon.

This morning I was determined that Jenny made it down to breakfast and Saturday’s always present a relaxed way of doing this as the clinic runs breakfast right through to lunch, meaning there is no rush in the morning.  Jenny took a bit of persuading, which did prove difficult for me as I’m sure it can come across to her as “nagging” but I can see the benefit she gets from spending a little time out of the room and integrating with other people.  Jenny definitely benefitted from making it down to the dining room this morning, but it was by no means easy for her.  Simple things like this really do require amazing effort and incredible courage from her – these are the things that you take for granted when healthy.  We met with the girls about 10.30am and had breakfast in a quiet dining room with a few others, with no time pressure.

Breakfast Helen, Justine, Jenny, Andy & Cathy
Jenny & Cathy Breakfast

Before we knew it the time was 1.00pm and time for the girls to depart.  This was always going to be difficult based on the bond between all of them.  Obviously Cathy is Jenny’s mum and both Helen & Justine have grown up with Jenny & Damsy and are all still very close.  It was great to see them but it was a shame they couldn’t stay a little longer.

Jenny, Helen, Justine, Cathy & Andy

Whilst we haven’t seen them for 2 weeks as she has been in Frankfurt having operations, Renae and her parents were due to fly home to Australia today.  I haven’t heard anything from them since the confirmation of their travel details, so I’m assuming they made the flight without any problems.  Renae has had 2 major lung operations in the last 2 weeks and is due to return back to the clinic once she has had some rest back home – what a truly inspirational young woman.

Whilst I was Skyping this afternoon Jenny got a visit from Dick & Cathy who had bought us some gifts.  They had got Jenny some new slippers, freeze-dried organic strawberries (which are just bizarre!), chocolates and pecan nuts.  I got a fab present which is just what I need at the moment as my fridge is filling up with chocolate and was in need of some liquid stock – a cold can of Guinness.  Thanks guys, totally unnecessary but very much appreciated.

This evening I had dinner in a very crowded dining room (Dr. Herzog was hosting a local sports club / team – he sponsors a cycling team and they may have been in the area so it could have been them).  Jenny stayed upstairs as she continues to improve but didn’t want to push herself too far in one day and after dinner Dick, Cathy, Hilary, Arthur & Sylvia came up to see her for an hour which just boosts Jenny no end and brought today to a fantastically positive conclusion.  Thanks everyone for being there when it matters.

Sylvia, Cathy, Arthur, Hilary & Dick

Over the last couple of weeks a theme has been cropping in with some of the gifts Jenny has been receiving – Angels.  Up until this week Jenny had been given a small ceramic angel by one of the nurses and this week also received an angel from Michelle & Stewart, an angel bracelet from Niggy & Jon and another ceramic angel from Hilary.  All of these coupled with the hanging crystal from Chris & Debs (which bathes the room in small shimmering rainbows) need to do their work now – come on guys don’t let us down.

Jenny's Angels

The last couple of days have been quite difficult as Jenny hasn’t been at her best and also quite uplifting because of our visitors.  I suppose all things considered these even out to give us a steady, average few days.  Week 9 is here and it’s time it dumped all its good fortune and vibes on us to get us back to where we were last week.  This coupled with a bit of “noetic” thinking from everyone will bring Jenny on leaps and bounds.

Its been a few weeks since I put a photo montage together so I thought I’d finish tonight with the latest installment…

If the above video won’t play directly from You Tube (due to international restrictions) then please click here to download the video (it’s set to open Windows Media Player by default and buffer the video – but this may differ from PC to PC).

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    • Die Tierschutzpartei ? Mmh…also ich hatte bei meiner ersten Auswahl auch zB die Freien Wähler mal angeklickt und die waren bei mir auf Platz 2. Finde ich ganz interessant im Bezug auf unsere Demokratie/Piraten-diskussionen etc…

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  41. Juzza and Jamie

    Glad to hear that you’re feeling a little brighter Jen than you were whilst we were visiting. It was great to see you, if you’re going to be there for any length of time I will definitely arrange another trip, but I was releived to see that you have built so many good friendships whilst you’ve been there. Harry will be very impressed to see that he has pride of place on the blog, he is in bed at the moment but I will make sure he sees it in the morning. Take care both if you, we love and miss you both.xx

  42. June

    Thankyou for a lovely blog, the montage of photograhs are fantastic along with the music which has left me pretty emotional to say the least….Jenny and Andrew both your courage and strength for each other is truely all inspiring and I feel so very humbled by you both…what more can I say, except…”simly the best, better than all the rest”…KTF…xxxx
    Jenny this is from me to you……

    Jenny you are a woman of strength, with great the courage to face another day, to handle whatever comes your way.
    You have so much love to give and so much hope in your heart which truely gives you a reason to live life’s part. You are a woman of strength and can face trouble with more hope,and in adversity, find the strength to cope….stay vital Jenny and always know that we are always right there behind you….sending you love,hope and the power of positive vibes all the way!
    So glad you you had the joy of your mum, helen and justine it must have given you a boost, along with the kindness of all your friends at the clinic….with the humanity of others brings the gift of kindness and you are truely blessed….Your courage goes before you and is not in the absence of fear but rather that something else is more important…that is you Jenny…stay strong, stay vital.
    Andy as for those regular pizza parties, can we have one of the same when you both get home along with the music….and the delight in seeing you both soon.
    Thats enough of me now…sending you both love and hugs…xxxxxxx

  43. Silvia & Ney

    It was great reading the blog and seeing everybody , specially Jen with her mum and cousins and all the great people that we met at the clinic. The photos and music made us a little teary , it just made us miss you guys even more .
    We are thinking of you and sending all our love and support , onwards and upwards (Ney’s favourite saying ) .
    Big hug
    Ney & Silvia

  44. Jane

    What a great blog. A great visit followed by the great video. Particularly loved the photo of Jen on the scooter with a hat that looks like rodStewarts hair!! . KTF xxxxxx lots of love xxxxxxx

  45. margaretstandish

    Fantastic montage Andy and Jen, lovely to see the picture of you with your hair down, you look great. I bet your jaws never stopped the three of you, just like always.

    Hope today finds you feeling stronger.

    Lots of love and strength

    Auntie Gooze and Uncle Dunk


  46. Ann

    What a lovely blog seeing everybody. Glad you enjoyed your time with Cath, Justine & Helen it must a been a big boost for you both.
    Hopefully over this weekend Jen you will start to feel a bit better, and feel well enough to go on Monday to have the portacath fitted. Everybody is behind you and we will all be doing ‘noetic thinking’ sending you loads of positive vibes to help and get you feeling better. Stay strong and keep fighting, you can and will do it!
    Andrew enjoy your can of Guiness and hoping to hear when you are coming home. Enjoyed the photo montage and music (more tears). So proud of you both. Love lots. All our love and kisses as always Mum, Dad and loads of tuddles from all the girls xxxxx

  47. Gail

    What a lovely positive blog x keep going Jen your amazing, and all the other friends youve made whilst there are just as amazing. Andy your her soul mate guardian angel aka Jockstrap.Seeing your Mum and family with you coupled with the video again made my eyes leek, I send you all the hope, love and success possible to the most perfect couple I’ve ever met., very special people indeed xxxxx Love,Faith and Success is in my prayers for you daily xxxxxxxx

  48. Gemma

    Missing you both lots, sending lots of love and puppy cuddles
    Gemsy n Henry Pud x x x x.

  49. Helen Jo

    Great visit, so enjoyed meeting your friends & putting faces to the names of those we’ve been reading about 🙂 It has to be said though, with the several square meals per day, my peach has paid a high price!! Ha!

    Great choice of song for the photo montage Andy!

    Love you both, miss you already! xxxxxxxxxx

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    <3 <3 xx

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